Tag Archives: rare disease

Soleo Health Expanding Ultra-rare Drug Distribution Products Portfolio

Soleo Health operates 20 locations throughout the U.S. with national nursing coverage and pharmacy licensure in 50 states and is accredited by The Joint Commission

Optum Frontier Therapies Launched to Focus on Cell and Gene Therapy

Optum Frontier Therapies Centers of Excellence (COEs) consist of dedicated teams focused on cell and gene therapy, rare disease drugs and digital therapeutics

BluePrint’s AYVAKIT and GAVRETO™ Selected Biologics and PantherRx Rare as Limited Specialty Pharmacies

Blueprint creates medicines that selectively target genetic drivers, with the goal of staying one step ahead across stages of disease

Eton Pharmaceuticals’ ALKINDI® SPRINKLE is available exclusively through AnovoRx

AnovoRx’s focus is intentionally centered on the unique needs of patients with chronic diseases who rely on specialty and orphan drugs as well as manufacturers

Centene Strengthens Specialty Pharmacy Rare Disease Position with PantherRx Acquisition

Biophama companies are increasingly interested in establishing relationships with  experienced specialty pharmacies to dispense rare disease drugs to patients

PantherRx Rare and Orsini Specialty Pharmacy Chosen as Partners for OXLUMO

Alnylam® Pharmaceuticals selected PantherRx Rare and Orsini Specialty Pharmacy as limited distribution partners for OXLUMO™ (lumasiran). OXLUMO is the first and only treatment approved for primary hyperoxaluria type 1 (PH1) to lower urinary oxalate levels in pediatric and adult patients. PH1 is an ultra-rare genetic disease characterized by the overproduction of oxalate, a waste product that […]

Rare Diseases and Orphan Drugs Growth Favorable to Specialty Pharmacies

Biophama companies are increasingly interested in establishing relationships with  experienced specialty pharmacies to dispense rare disease drugs to patients